How prepared are families for patients undergoing continuous ambulatory peritoneal dialysis therapy?

  • Siti Fatimah 
    Yogyakarta Muhammadiyah University
    Indonesia
  • Azizah Khoiriyati
    Yogyakarta Muhammadiyah University
    Indonesia

Abstract

Family readiness is crucial in Continuous Ambulatory Peritoneal Dialysis (CAPD) therapy, as families play a central role as caregivers, helping to maintain care quality and reduce complications. This scoping review aims to systematically assess the literature to identify key aspects of family readiness in supporting patients undergoing CAPD therapy, highlighting its importance for better patient outcomes and its contribution to broader knowledge in patient care. Literature was selected using the Population and Concept (PC) framework, with the population of interest being families of CAPD patients and the concept focused on family readiness. Studies from 2015 to December 2023 were sourced from PubMed, Science Direct, PROQUEST, and Google Scholar, with inclusion criteria focusing on family involvement in CAPD care and exclusion criteria eliminating non-relevant studies. Ten articles met the criteria, revealing critical aspects of family readiness, including caregiving burden, communication with healthcare providers, knowledge of the disease and therapy, material and emotional support, and understanding of the dialysis service system. These factors are essential for ensuring quality care, reducing risks, and improving overall CAPD therapy success.

Keywords
  • CAPD
  • peritoneal dialysis
  • family readiness
  • family perception
  • chronic kidney disease
Lisensing Information
Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

References
  1. Alshammari, B., Noble, H., McAneney, H., Alshammari, F., & O’Halloran, P. (2021). Factors associated with burden in caregivers of patients with end-stage kidney disease (a systematic review). Healthcare, 9(9), 1212.
  2. Ania‐González, N., Martín‐Martín, J., Amezqueta‐Goñi, P., & Vázquez‐Calatayud, M. (2022). The needs of families who care for individuals with kidney failure on comprehensive conservative care: A qualitative systematic review. Journal of Renal Care, 48(4), 230–242.
  3. Arlinta, D. (2023). Memantau Pasien Peritoneal Dialisis Berbasis Digital. Kompas.Id. https://www.kompas.id/baca/humaniora/2023/06/11/sistem-monitoring-pasien-capd-secara-digital
  4. Bieber, S. D., & Young, B. A. (2021). Home hemodialysis: Core curriculum 2021. American Journal of Kidney Diseases, 78(6), 876–885.
  5. C. Singmanee, T. V. and C. T. (2016). Effect of Family Support on Health Behaviors among © 2016 University of Adelaide , Joanna Briggs Institute . Unauthorized reproduction of this article is prohibited . Diciembre, 14.
  6. Chan, C. T., Collins, K., Ditschman, E. P., Koester-Wiedemann, L., Saffer, T. L., Wallace, E., & Rocco, M. V. (2020). Overcoming barriers for uptake and continued use of home dialysis: an NKF-KDOQI conference report. American Journal of Kidney Diseases, 75(6), 926–934.
  7. Chemweno, P., & Pintelon, L. (2020). A comparative risk assessment of dialysis care processes in the home and hospital care contexts. International Journal of System Assurance Engineering and Management, 11(5), 985–1002.
  8. DePasquale, N., Cabacungan, A., Ephraim, P. L., Lewis-Boyér, L., Diamantidis, C. J., Powe, N. R., & Boulware, L. E. (2020). “I Wish Someone Had Told Me That Could Happen”: a thematic analysis of patients’ unexpected experiences with end-stage kidney disease treatment. Journal of Patient Experience, 7(4), 577–586.
  9. DePasquale, N., Cabacungan, A., Ephraim, P. L., Lewis-Boyér, L. P., Powe, N. R., & Boulware, L. E. (2019). Family Members’ Experiences With Dialysis and Kidney Transplantation. Kidney Medicine, 1(4), 171–179. https://doi.org/10.1016/j.xkme.2019.06.001
  10. Faridah, V. N., Lestari, T. P., & Qowi, N. H. (2024). A Review of Family Caregiver’s Responses of Care to Patients Undergoing Hemodialysis. Poltekita: Jurnal Ilmu Kesehatan, 17(4), 1145–1159.
  11. Farzi, S., Farzi, S., Moladoost, A., Ehsani, M., Shahriari, M., & Moieni, M. (2019). Caring burden and quality of life of family caregivers in patients undergoing hemodialysis: A descriptive-analytic study. International Journal of Community Based Nursing and Midwifery, 7(2), 88.
  12. Finderup, J., Jensen, J. D., & Lomborg, K. (2021). Shared decision‐making in dialysis choice has potential to improve self‐management in people with kidney disease: A qualitative follow‐up study. Journal of Advanced Nursing, 77(4), 1878–1887.
  13. Fox, D. E., Quinn, R. R., James, M. T., Venturato, L., & King-Shier, K. M. (2020). Social Support in the Peritoneal Dialysis Experience: A Qualitative Descriptive Study. Canadian Journal of Kidney Health and Disease, 7. https://doi.org/10.1177/2054358120946572
  14. Frontini, R., Sousa, H., Ribeiro, O., & Figueiredo, D. (2021). “What do we fear the most?”: Exploring fears and concerns of patients, family members and dyads in end‐stage renal disease. Scandinavian Journal of Caring Sciences, 35(4), 1216–1225.
  15. Ghafourifard, M., Mehrizade, B., Hassankhani, H., & Heidari, M. (2021). Hemodialysis patients perceived exercise benefits and barriers: the association with health-related quality of life. BMC Nephrology, 22, 1–9.
  16. Griva, K., Seow, P. S., Seow, T. Y. Y., Goh, Z. S., Choo, J. C. J., Foo, M., & Newman, S. (2020). Patient-Related Barriers to Timely Dialysis Access Preparation: A Qualitative Study of the Perspectives of Patients, Family Members, and Health Care Providers. Kidney Medicine, 2(1), 29–41. https://doi.org/10.1016/j.xkme.2019.10.011
  17. Hannawa, A. F., Wu, A. W., Kolyada, A., Potemkina, A., & Donaldson, L. J. (2022). The aspects of healthcare quality that are important to health professionals and patients: A qualitative study. Patient Education and Counseling, 105(6), 1561–1570.
  18. Hussein, W. F., Bennett, P. N., & Schiller, B. (2021). Innovations to increase home hemodialysis utilization: the transitional care unit. Advances in Chronic Kidney Disease, 28(2), 178–183.
  19. Isnaini, N., Sukma, R., & Aprilina, H. D. (2021). The influence of family support on self efficacy of chronic kidney disease. 4th International Conference on Sustainable Innovation 2020–Health Science and Nursing (ICoSIHSN 2020), 484–487.
  20. Jaelani, T. R., Ibrahim, K., Jonny, J., Pratiwi, S. H., Haroen, H., Nursiswati, N., & Ramadhani, B. P. (2023). Peritoneal Dialysis Patient Training Program to Enhance independence and Prevent Complications: A Scoping Review. International Journal of Nephrology and Renovascular Disease, 207–222.
  21. Kementerian Kesehatan RI Badan Penelitian dan Pengembangan. (2018). Hasil Utama Riset Kesehatan Dasar. Kementrian Kesehatan Republik Indonesia. https://kesmas.kemkes.go.id/assets/upload/dir_519d41d8cd98f00/files/Hasil-riskesdas-2018_1274.pdf
  22. Kwame, A., & Petrucka, P. M. (2021). A literature-based study of patient-centered care and communication in nurse-patient interactions: barriers, facilitators, and the way forward. BMC Nursing, 20(1), 158.
  23. Molina-Mula, J., & Gallo-Estrada, J. (2020). Impact of nurse-patient relationship on quality of care and patient autonomy in decision-making. International Journal of Environmental Research and Public Health, 17(3), 835.
  24. Noyes, J., Roberts, G., Williams, G., Chess, J., & Mc Laughlin, L. (2021). Understanding the low take-up of home-based dialysis through a shared decision-making lens: a qualitative study. BMJ Open, 11(11), e053937.
  25. O’Hare, A. M., Szarka, J., McFarland, L. V., Vig, E. K., Sudore, R. L., Crowley, S., Reinke, L. F., Trivedi, R., & Taylor, J. S. (2017). “Maybe they don’t even know that I exist”: Challenges faced by family members and friends of patients with advanced kidney disease. Clinical Journal of the American Society of Nephrology, 12(6), 930–938. https://doi.org/10.2215/CJN.12721216
  26. Regunath, H., Ludwig, K., & Khanna, R. (2023). Peritoneal Infections in Peritoneal Dialysis (PD Peritonitis). In Nolph and Gokal’s Textbook of Peritoneal Dialysis (pp. 431–465). Springer.
  27. Senghor, A. S. (2021). How do patients and health professionals perceive the role of family members in the decision-making process regarding the choice of a dialysis method? A qualitative study. Revue d’Epidemiologie et de Sante Publique, 69(1), 22–29. https://doi.org/10.1016/j.respe.2020.10.006
  28. Shi, Y., Li, W., Duan, F., Pu, S., Peng, H., Ha, M., & Luo, Y. (2022). Factors promoting shared decision-making in renal replacement therapy for patients with end-stage kidney disease: systematic review and qualitative meta-synthesis. International Urology and Nephrology, 54(3), 553–574.
  29. Susanti, S., & Bistara, D. N. (2021). The effect of coaching support on kidney function in chronic kidney disease patients. Open Access Macedonian Journal of Medical Sciences (OAMJMS), 9(T4), 106–110.
  30. Tavares, J. M. A. B., Lisboa, M. T. L., Ferreira, M. de A., Valadares, G. V., & Silva, F. V. C. E. (2016). Peritoneal dialysis: family care for chronic kidney disease patients in home-based treatment. Revista Brasileira de Enfermagem, 69(6), 1172–1178. https://doi.org/10.1590/0034-7167-2016-0262
  31. Walker, R. C., Howard, K., Morton, R. L., Palmer, S. C., Marshall, M. R., & Tong, A. (2016). Patient and caregiver values, beliefs and experiences when considering home dialysis as a treatment option: A semi-structured interview study. Nephrology Dialysis Transplantation, 31(1), 133–141. https://doi.org/10.1093/ndt/gfv330
  32. Zhang, R., Pu, C., Cui, X., Zhang, N., Li, X., & Zheng, F. (2020). Burden in primary family caregivers caring for uremic patients on maintenance peritoneal dialysis. Peritoneal Dialysis International, 40(6), 556–562

Downloads

PDF

Statistic

Abstract Views
: 219 times
PDF
: 106 times